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Testing Fate – Tay-Sachs Disease and the Right to Be Responsible - Minnesota Scholarship Online
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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible

Shelley Z. Reuter

Abstract

Testing Fate looks at the racialized history of Tay-Sachs in the US and UK in its construction as a Jewish disease from the late-nineteenth century through to the present era of geneticization, where people are increasingly expected to make the “right” kinds of medical-genetic choices, including the choice to be screened for genetic disease. Taking Tay-Sachs as its exemplar and with a view to exploring what these developments have come to mean for human agency, the book demonstrates that authentic, free choice in genetic-decision-making on one hand, and responsible biocitizenship in a context ... More

Keywords: Tay-Sachs Disease, Biocitizenship, Medical Racialism, Racialization, Specularism, Ethics, Genetics, Genetic Screening, Immigration, Medical Malpractice

Bibliographic Information

Print publication date: 2016 Print ISBN-13: 9780816699957
Published to Minnesota Scholarship Online: May 2017 DOI:10.5749/minnesota/9780816699957.001.0001

Authors

Affiliations are at time of print publication.

Shelley Z. Reuter, author
Concordia University