Jump to ContentJump to Main Navigation
Testing FateTay-Sachs Disease and the Right to Be Responsible$
Users without a subscription are not able to see the full content.

Shelley Z. Reuter

Print publication date: 2016

Print ISBN-13: 9780816699957

Published to Minnesota Scholarship Online: May 2017

DOI: 10.5749/minnesota/9780816699957.001.0001

Show Summary Details
Page of

PRINTED FROM MINNESOTA SCHOLARSHIP ONLINE (www.minnesota.universitypressscholarship.com). (c) Copyright University of Minnesota Press, 2022. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in MNSO for personal use.date: 07 July 2022

The Unethics of Looking at Disease–Disability

The Unethics of Looking at Disease–Disability

Online Representations of Tay-Sachs

(p.117) Chapter Four The Unethics of Looking at Disease–Disability
Testing Fate

Shelley Z. Reuter

University of Minnesota Press

The fourth chapter examines the lay discourse of Tay-Sachs, specifically the way in which online video representations of children with the disease have served to constitute the disease and the Other of Tay-Sachs more recently, namely as a tragic disease-disability that can be avoided with a simple genetic test. The ethics of posting such videos is explored during this chapter.

Keywords:   Tay-Sachs Disease, Children, Representation, Narrative, Medical Racialism, Racialization, Ethics, Genetic Screening, Immigration, Medical Malpractice

Minnesota Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs, and if you can't find the answer there, please contact us.